A Scooter-a-Thon will be held on Saturday, May 21 from 9 a.m. to noon at Palisades High School to raise money to fund research for Batten Disease. The second goal is to raise awareness of this life-threatening disease and to get local kids involved and teach them about giving back.
Palisadians Charlotte, 5, and Gwenyth Gray, 3, were diagnosed with Late Infantile-NCL Batten Disease CLN6. Parents Gordon and Kristen Gray were told it was rare disease and that the specific variant, CLN6, was even rarer. The disease progressively leaves a child blind, immobile and cognitively impaired; it eventually leads to death, usually between the ages of 6 and 12.
The family is trying to raise between $10 million and $12 million to push research forward to find a possible treatment. Charlotte is already experiencing some symptoms of this devastating disease.
If you would like to help the Grays and other families threatened by this rare genetically inherited disorder, make checks payable to The Charlotte & Gwenyth Gray Foundation, c/o The Giving Back Fund, 6033 W. Century Blvd., Suite 350, Los Angeles, CA 90045.
Visit: curebatten.org or curebatten@ givingback.org or vimeo.com/129076730.
Gwenyth and Charlotte Gray
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