A Scooter-a-Thon will be held on Saturday, May 21 from 9 a.m. to noon at Palisades High School to raise money to fund research for Batten Disease. There will be face painting, a DJ, activity booths and In-N-Out Truck and the opportunity to scoot around the PaliHi track. Register: curebatten.org/scooter<http://curebatten.org/scooter>.
Palisadians Charlotte, 5, and Gwenyth Gray, 3, were diagnosed with Late Infantile-NCL Batten Disease CLN6. Parents Gordon and Kristen Gray were told the rare disease progressively leaves a child blind, immobile and cognitively impaired; it eventually leads to death, usually between the ages of 6 and 12.
The family is trying to raise between $10 million and $12 million to push research forward to find a possible treatment. Charlotte is already experiencing some symptoms of this devastating disease.
If you would like to help the Grays and other families threatened by this rare genetically inherited disorder, make checks payable to The Charlotte & Gwenyth Gray Foundation, c/o The Giving Back Fund, 6033 W. Century Blvd., Suite 350, Los Angeles, CA 90045.
Visit: curebatten.org<http://curebatten.org> or curebatten@givingback.org<mailto:curebatten@givingback.org> or vimeo.com/129076730<http://vimeo.com/129076730>.
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